Foundation News Historic FDA Advisory Committee On Wednesday, March 30, an FDA Advisory Committee voted 6 to 4 that the current data on Amylyx Pharmaceuticals’ investigational treatment AMX0035 does not support it as an effective treatment for ALS. While …
Research News from the Les Turner ALS Center at Northwestern Medicine
The 40+ research scientists at the Les Turner ALS Center at Northwestern Medicine investigate a wide range of biologic mechanisms in ALS basic research. We are pleased to announce the recent publication of three new research papers from some of …
Our Oral Testimony to the FDA Advisory Committee on the Approval of AMX0035
Open Public Hearing FDA Advisory Committee on AMX0035 March 30, 2022 Good afternoon. My name is Andrea Pauls Backman, CEO of the Les Turner ALS Foundation. My only disclosure is that the Les Turner ALS Foundation receives less than 2% …
Comments on Amylyx Pharmaceuticals’ New Drug Application for AMX0035
RE: Docket No. FDA-2018-N-0410 Dear FDA Advisory Committee: Founded in 1977, the Les Turner ALS Foundation is the oldest independent ALS group in the country. For 45 years, it has been our mission to provide the most comprehensive care and …
Faces of ALS: Joshua Cohen and Justin Klee – ALS Innovators and Advocates at Amylyx Pharmaceuticals, Inc.
At this year’s Hope Through Caring Gala on May 21, we are proud to present the Harvey and Bonny Gaffen Advancements in ALS Award to two innovators and longtime advocates of ALS – Joshua Cohen and Justin Klee, co-founders of …
March 2022 Events eNews
Events News Introducing the Harvey and Bonny Gaffen Advancements in ALS Award Honorees Join us at the Hope Through Caring Gala on May 21 when we present the Harvey and Bonny Gaffen Advancements in ALS Award to Joshua Cohen …
March 2022 Foundation eNews
Foundation News Celebrating 45 Years! This year, we honor the vision of our founders who, 45 years ago, established a foundation to fund ALS research in honor of their friend and family member, Les Turner, a young Chicago businessman …
Response to NINDS Request for Information on ALS Strategic Plan
February 11, 2022 Dear NINDS, As we set our sights on shaping the strategic future of ALS research, we thank you for the opportunity to identify key research and priorities at NIH and beyond. We also recognize …
February 2022 Events eNews
Events News Our 2022 Hope Through Caring Award Honoree – Dr. Lisa F. Wolfe Join us on May 21 when we present the Hope Through Caring Award to Lisa F. Wolfe, MD of Northwestern Medicine, who throughout her extensive …
February 2022 Foundation eNews
Foundation News New Date for the Hope Through Caring Gala! Join us in-person (or virtually) on our new date, Saturday, May 21, for our annual Hope Through Caring Gala at the Radisson Blu Aqua Hotel in Chicago. Our honorees …
