We’re thrilled to welcome Erin Reardon Cohn, Executive Vice President of First Bank Chicago, to her new role as chair of the board of directors. Erin joined the board in 2019 and served as the Foundation’s treasurer for the last …
June 2022 Events eNews
Event News Welcome New Strike Out Teams! One thing we look forward to at our community events is seeing all the new faces who get involved every year! We’re inspired by meeting the people who participate and form ambitious, dedicated …
June 2022 Foundation eNews
Foundation News The 34th Annual Hope Through Caring Gala: Reunited and it feels so good! Through your generous donations, we raised nearly $550,000 to support research, clinical trials, and, most of all, personalized care for people living with ALS. …
New results show promise in treatment of SOD1-ALS
New results from the Phase 3 clinical trial of tofersen, a drug in development by Biogen, have shown promise in treatment of superoxide dismutase 1 (SOD1) amyotrophic lateral sclerosis (ALS). According to the 12-month data, earlier initiation of treatment with …
NU-9 Update: Experimental drug repairs upper motor neurons in mouse model
As connecting fibers between motor neurons, axons help deliver vital messages between the brain and the spinal cord. For people living with ALS, deteriorating axons cause that connection to break, contributing to paralysis and death. Early research on NU-9, an …
Faces of ALS: Eloise Nilges
A Lasting Legacy of Love, Faith, and Adventure Recently, Terri experienced her first Mother’s Day without her mom, Eloise. In this month’s “Faces of ALS,” we learn more about Eloise’s journey with ALS and how Terri continues to honor her …
Breaking News: FDA Approves Oral Edaravone
This story has been updated with a link to the informational webinar about the new medication. The U.S. Food and Drug Administration has approved RADICAVA ORS®, an oral form of edaravone that reports the same efficacy as RADICAVA® for intravenous infusion. …
May 2022 Events eNews
Events News Runners, Walkers, and Rollers – It’s Time to Strike Out ALS on July 21! Registration for our Strike Out ALS 5k and 1 Mile Run, Walk & Roll is now open – let’s celebrate summer together at …
May 2022 Foundation eNews
Foundation News Hope Through Caring Gala – Last Chance to Purchase Tickets! We’re less than three weeks away from the Hope Through Caring Gala! We’re excited to celebrate with the ALS community and honor three incredible individuals for their …
Faces of ALS: Anita Forté
Anita Forté – Fighting ALS with Positivity and Gratitude After having dealt with multiple ailments the past few years, along with ALS, there’s no doubt that Anita Forté is a fighter. She wakes up each morning and starts the day …
