Take action and urge your Representative to support the Personalize Your Care Act (PYCA)! This act was introduced by Earl Blumenauer (D-OR) and Rep. Phil Roe (R-TN) in the US House of Representatives to increase accessibility to and public awareness …
Senate votes to pass amendment to the National Defense Authorization Act
The Les Turner ALS Foundation is pleased to announce that, this week, the Senate voted to pass Senator Dick Durbin’s (D-IL) amendment to the National Defense Authorization Act to protect crucial medical research programs for ALS funded by the Department …
Today’s Caregiver: 5 Lessons I Have Learned From Being A Young Caregiver For My Husband With ALS
Wife of PALS, Sherlyn Brubeck recently shared the five lessons she has learned from being a caregiver to her husband with Today’s Caregiver. Since being diagnosed with ALS in 2014, Sherlyn has become her husband’s primary caregiver. To read the …
670 The Score Values: Les Turner ALS Foundation
Executive Director, Andrea Pauls Backman joined Kevin on 670 The Score during the segment Score Values to discuss the Les Turner ALS Foundation’s upcoming events. Listen to the entire interview to learn more about the Foundation and events to get …
Legislation Introduced to Waive Five Month SSDI Waiting Period For People Living With ALS
Take Action to urge your Members of Congress to co-sponsor the “ALS Disability Insurance Access Act” and support people living with ALS by getting them the benefits they need faster. The Act, which was introduced by Senators Sheldon Whitehouse (D-RI) and …
Adjacent Government: Helping ALS patients is not only a medical need, but also a moral obligation
An article by Dr. Hande Ozdinler was published in Adjacent Government which provides a unique look at the complexities of ALS as well as the limitations researchers face as they search for a cure. Having funds for research is crucial …
Pesticide Exposure Found in Early Study to Possibly Trigger ALS
According to ALS News Today, a study published online in JAMA Neurology states that environmental pollutants such as pesticides has been linked to ALS and may represent modifiable ALS disease risk factors. Researchers at the University of Michigan studied occupational …
ALS Drug Development Guidance Available for Comment
Make Your Voice Heard We are happy to announce that the first draft of the community-driven FDA Guidance on ALS drug development is available for your review and comment. In our April e-newsletter, we shared the exciting news that the …
Registration Open: 2016 ALS Walk for Life
The 2016 ALS Walk for Life will be held on Sunday, September 18 at Soldier Field in Chicago and you can be one of the first to register. Join over 7,000 people at Chicago’s largest gathering for people living with …
International Alliance of ALS/MND Associations Update
The International Alliance of ALS/MND Associations has recently revised the guideline on the fundamental rights of people living with ALS/MND. These rights for people living with ALS/MND have been created to represent ideal conditions for those living with the disease …
