Updated: On March 14, 2025, the Senate passed a bill that will fund the government through Sept. 30, 2025. We will continue to provide updates as we learn more about how these budget cuts will affect ALS research. This is …
LETTER: Neuromuscular Advocacy Groups Oppose NIH Indirect Cost Cap of 15%
On behalf of the approximately 300,000 Americans living with a neuromuscular disease (NMD), the undersigned 40 patient advocacy organizations strongly urge the National Institutes of Health (NIH) to immediately reverse and retract “Supplemental Guidance to the 2024 NIH Grants Policy …
URGENT: Tell Congress to Oppose Catastrophic Research Cuts
The National Institutes of Health (NIH) recently announced a major reduction in grant funding that would have a catastrophic impact on research, especially for neuromuscular diseases like ALS. NIH funding has led to amazing discoveries, including the underlying mechanisms of …
Introducing the New Participating in Clinical Research Tool
Deciding whether to participate in clinical research is a pivotal step for people living with ALS and their families. It’s a process often filled with important questions about risks, benefits, and expectations. Clear and reliable information is essential to empower …
National Institute on Aging invests an additional $7.3 million into NU-9
With its ability to improve neuron health, experimental drug NU-9 has already shown promise in reversing amyotrophic lateral sclerosis (ALS). Now, the National Institute on Aging (NIA) has provided approximately $7.3 million to fund exploration into the Northwestern University-invented drug’s …
Les Turner ALS Center at Northwestern Medicine and Sean M. Healey & AMG Center for ALS Establish Acceleration Centers of Enrollment Initiative
Together with the Sean M. Healey & AMG Center for ALS at Massachusetts General Hospital, the Les Turner ALS Center at Northwestern Medicine is thrilled to announce the launch of the Acceleration Centers of Enrollment (ACE) initiative. The ACE initiative …
New ALS research grants awarded for 2024
We’re excited to share the latest ALS research grants from the Les Turner ALS Center at Northwestern Medicine and highlight a new milestone: in 2024, the Les Turner ALS Foundation is funding more than $1 million in ALS research grants …
Making Clinical Research Accessible: Insights from a Research Professional
Clinical research at the Lois Insolia Clinic at the Les Turner ALS Center at Northwestern Medicine plays a pivotal role in helping researchers understand the causes of ALS and how to develop better treatments for the disease. But many people …
To find the cause of ALS, researchers look to metabolism within motor neurons
As researchers at the Les Turner ALS Center at Northwestern Medicine search for the root causes of ALS, they are examining processes within the body — even down to the cellular level. In fact, recent research has shown that people …
Harnessing the power of stem cells to find the drivers behind sporadic ALS
To better understand the molecular mechanisms that underlie ALS, researchers at the Les Turner ALS Center at Northwestern Medicine are harnessing the power of one of the 21st century’s most powerful medical tools: stem cells. In the lab of Evangelos …
