In the next year alone, about 5,000 people in the U.S. may be diagnosed with #ALS. The National #ALSRegistry is connecting persons living with ALS with researchers who want to find the causes of the disease, help those diagnosed, and …
PALS Webinar: How Professionals Can Help Kids in ALS Families
On April 5, our Director of Social Services, Laurie B. Fieldman, LCSW, led a Northeast ALS Consortium (NEALS) webinar, sharing her expertise on how to minimize the impact on children in ALS families. Many professionals don’t get the opportunity to …
2017 ALS News You Can Use
This past Sunday, March 19, the Foundation hosted our annual educational meeting that covered the latest on ALS research and patient care from experts in the field. Over 40 people including staff and board members, people living with ALS and …
Celebrating 30 Years: The Lois Insolia ALS Clinic at Northwestern
The Lois Insolia ALS Clinic at Northwestern Medicine has continuously provided total care and support of people with ALS, their families and their caregivers for the last 30 years. During those three decades, the Lois Insolia ALS Clinic has received support …
ALS Walk for Life Sponsor Announces New Collaboration
The Les Turner ALS Foundation is happy to share great news about one of our ALS Walk for Life event sponsors, Cytokinetics. The drug development company has finalized a deal to collaborate with global pharma company, Astellas to conduct further research …
National ALS Registry Updates
As proud partners of the National ALS Registry, Les Turner ALS Foundation Executive Director, Andrea Pauls Backman and Director of Patient Services, Judy Richman, attended the Annual Agency for Toxic Substances and Disease Registry (ATSDR) Meeting in Atlanta this week. …
Guidelines for Clinical Trials in ALS/MND – 2016 update
This past March, 140 international thought leaders in the field of ALS met at the ALS Clinical Trials Guidelines 2016 Workshop. Among those in attendance included Dr. Teepu Siddique and Dr. Senda Ajroud-Driss on behalf of the Les Turner Research …
A summer of groundbreaking genetic discoveries in ALS
It has been a summer of groundbreaking genetic discoveries in ALS! In July, the Les Turner ALS Research and Patient Center at Northwestern Medicine shared the news from the lab of Dr. Teepu Siddique of the discovery of a third …
Racing for Awareness
Since Derek Hogg was diagnosed with ALS in 2013, he has become a staple at the Les Turner ALS Foundation’s Strike Out ALS 5k. Whether running, using his son’s stroller for support or peddling a special recumbent bike, Derek defines …
March of Faces Banner
Honor a loved one by including them on a March of Faces banner. The banners travel with the Foundation and are displayed at various events throughout the year as a way to recognize those we have lost to ALS despite …