December 2019 Foundation eNews

Give Your Gift of Help this Giving Tuesday

This holiday season, your tax-deductible gift provides life-changing help to a person living with ALS. And what better day to kick off your end of year giving than today, Giving Tuesday, the global day a giving?

Your gift gives our Les Turner ALS family the free Support Services they need to continue their fight against this disease.

Do you know what $100 can do? $100 provides four hours of care to assist a person living with ALS with their daily personal care needs like washing, dressing and eating. The very things many of us take for granted each and every day.

Don’t close out 2019 without supporting your Les Turner ALS family. Make your gift of help today>>


Advancing Advocacy Efforts for our ALS Community

While 2019 might be coming to a close, we’re already hard at work fighting to protect and advocate for our Chicagoland ALS community in 2020 all the way in Washington D.C.

Through partnerships with our ALS and greater neuromuscular disease (NMD) community, we are working to help advance three legislative priorities for people living with ALS.

Covering the areas of Social Security Disability Insurance, noninvasive ventilator (NIV) access and genetic counseling, these advocacy efforts would help ease the burden our families living with ALS face on a daily basis. Continue on to read about these legislative efforts and view our letters of support>>

 


Relive our Les Turner Symposium on ALS and NeuroRepair

Last month, we welcomed some of the best and brightest minds in the ALS field to join us at our Les Turner ALS Symposium on ALS and NeuroRepair.

Members of our Les Turner ALS Center at Northwestern Medicine, as well as researchers from across the United States, presented their latest findings and shared their insight.

Symposium’s like ours offer a unique opportunity for researchers to come together, ask questions, learn from one another and even make plans to collaborate on upcoming projects. Furthermore, we also offered a Clinical Conversations Panel that welcomed questions from professionals and people living with ALS and their families.

Thank you to all the members of the research community and our Les Turner ALS family who joined! The day’s presentations can be viewed in full by following the link below. The day’s presentations can be viewed in full by clicking here>>