Introducing the Harvey and Bonny Gaffen Advancements in ALS Award Honorees
Join us at the Hope Through Caring Gala on May 21 when we present the Harvey and Bonny Gaffen Advancements in ALS Award to Joshua Cohen and Justin Klee, co-founders of Amylyx Pharmaceuticals.
Amylyx’s therapeutic compound for ALS, AMX0035, is currently under priority review with the FDA.
Although Josh and Justin didn’t have a personal connection to ALS, Josh recalls the decision to concentrate on ALS and neurodegenerative diseases: “As an undergraduate at Brown University, I became fascinated with the idea of neurodegeneration and why there was limited evidence behind its root cause. Out of my own curiosity, I read countless papers which all led to one question, ‘Why do neurons die?’ Alongside Justin, we founded a company to address this question.”
Justin shares, “From day one, we have felt so privileged to be a part of this community, fighting for new treatment options and change in a community that deserves better. What’s changed is while there was always amazing research and initiatives, it really feels like we’re in a new era now, and there’s greater hope than ever. It’s such an exciting time.”
Join us on May 21 when we present the Harvey and Bonny Gaffen Advancements in ALS Award to Joshua Cohen and Justin Klee, co-founders of Amylyx Pharmaceuticals, at the Hope Through Caring Gala. Get your tickets (which are always complimentary for people living with ALS) today!
March ALS Learning Series: Making Activities of Daily Life Easier in ALS
Join us on March 17 from 12pm – 1pm CT for the next webinar in our ALS Learning Series, ‘Making Activities of Daily Life Easier in ALS.’ If you are a person living with ALS or a caregiver needing information and tips on how ALS impacts daily routines, you won’t want to miss this!
The ALS Learning Series webinars are produced as a free service by the Les Turner ALS Foundation.
Presenter Becca Schroeder, MOT, OTR/L, is an occupational therapist at the Lois Insolia ALS Clinic at the Les Turner ALS Center at Northwestern Medicine and has been a part of the team since 2018.
This webinar will cover devices for getting through your daily routine and offer suggestions on ways to increase your independence.
You will also learn about different types of adaptive equipment for eating, drinking, toileting, bathing, oral hygiene, grooming, and recreation.
Thank you to Mitsubishi Tanabe Pharma America for sponsoring this webinar.
To learn more about our ALS educational materials, visit lesturnerals.org/resources.
Beat the Buzzer – Secure Your NCAA Brackets Today!
There’s still time to secure your NCAA brackets for our Young ProfessionALS Group (YPG) Bracket Challenge for Charity! This challenge is an exciting time to have fun, compete against friends and family, and raise funds to support people living with ALS – all while keeping up with this entertaining tournament.
Take the chance to win up to $500 and purchase your bracket: one for $25, two for $40, or three for $55. Plus, purchasing a bracket gets you into the kick-off party; join the YPG group at the Pony Inn in Chicago on March 10 at 6pm for pizza and appetizers to celebrate!
Be sure time doesn’t run out on you, brackets must be purchased by March 17 before the first game begins!
Give Back Through the myWalgreens Donation Program
myWalgreens is a one-of-a-kind personalized experience that makes saving, shopping, and your well-being easier. From March 1 through May 31, you can donate your 1% Walgreens cash rewards to the Les Turner ALS Foundation. It’s that easy, and it’s FREE through the myWalgreens app.
On the app, if your preferred store location doesn’t include the option to give to the Les Turner ALS Foundation, manually change your ZIP code to 60077 or city to Skokie and donate. If you aren’t already a member of myWalgreens, download the myWalgreens app today or sign up at myWalgreens.com.
Every time you pick up a prescription, photos, or toiletries, you can also help someone living with ALS. So, get shopping today!