Join Ken and Team Never Give Up at the Walk for Life
After being diagnosed with ALS a little over three years ago, Ken Trent has been an active participant in the Les Turner ALS Walk for Life with Team HOPE. He has also helped plan two successful fundraising events: a “Strikeout ALS” softball tournament and a basketball camp with a t-shirt sales fundraiser.
Ken walks to provide hope for everyone living with ALS. His advice to others considering hosting a fundraising event is to, “go for it because you might be surprised to discover how many people want to help.”
Let’s walk together to support those affected by ALS and continue to raise much-needed funds for research and care. Join Ken and many others at the Les Turner ALS Walk for Life on Saturday, September 14, at Soldier Field in Chicago.
Mark your calendars for Monday, November 4, as the Les Turner Symposium on ALS returns to Chicago. Join us virtually or in person to engage with leading ALS researchers, clinicians, advocates, and people with lived experiences of ALS. This year’s symposium offers a unique opportunity to discuss the latest research and perspectives on ALS, ask questions, and share insights with those dedicated to delivering the best possible ALS care.
We are now accepting abstract submissions until September 3, 2024. Don’t miss this chance to contribute to the conversation and share your research.
Learn more about the program, register, and/or submit your abstract by clicking the link.
On Friday, July 19th, there wasn’t a dry eye in sight as retired deputy chief firefighter Hugh Stott, diagnosed with ALS in 2020, was honored at his home in Winfield, IL. The street was lined with fire trucks and a large crowd gathered to show their love and support for Hugh.
Reflecting on his life, Hugh quoted Joe Walsh of the Eagles, saying, “Life’s been good to me so far. I made a lot of friends through teaching, and they turned out to be great people. I was in the right place at the right time.”
Hugh and his family received a $5,000 grant from Fire Department Coffee, which they used to purchase a new customized manual reclining wheelchair. This generous donation allowed them to return his previous wheelchair to the Les Turner ALS Foundation’s loan closet, benefiting another person in need. To learn more about our equipment loans, as well as our many grant programs available to people living with ALS and their families, click the link .
Mark your calendars for the National ALS Registry 2024 Annual Meeting, held virtually on September 4th-5th.
This meeting is a crucial platform for neurologists, researchers, advocacy groups, and especially people with lived experience to provide guidance and direction for National ALS Registry initiatives. You’ll also hear scientific updates from the Registry’s research grantees.
Join us online to contribute to this important discussion and help shape the future of ALS research and advocacy.
Don’t miss the deadline for March of Faces
Honoring the courageous individuals who have battled ALS, the March of Faces banner will be proudly displayed at the upcoming Les Turner ALS Walk for Life, showcasing the legacy of those who fought bravely from 2003 to the present.
Submit your loved one’s name and photo to be included in this meaningful display, fostering global awareness with the International Alliance of ALS/MND Associations. Participation is entirely free, but donations to support our mission of a world without ALS are greatly appreciated.
