August 2024 Foundation eNews

Ashley RosenbrockFoundation eNews, Home Page

A team that won’t slow down

Leslie Bartosz was diagnosed with ALS in August 2020, which has led to challenges with her mobility. That didn’t stop her from creating beautiful custom designs for her team’s Les Turner ALS Walk for Life shirts. Since Leslie’s diagnosis, Team Run for Her Life has been out in force at every Walk – and they’ll be back again this year.

Julianne Oliver, her daughter, is looking forward to it. “My favorite part is seeing the community and knowing how much support there is for people in our situation,” she says. “It’s empowering to know we can have that kind of impact.”

Join us on Saturday, Sept. 14, at Soldier Field in Chicago. Register today to walk alongside families like Leslie’s and make a difference in the fight against ALS.

Revealed: the official 2024 Walk t-shirt!

We’re thrilled to announce that the votes are in, and our community has chosen this year’s Les Turner ALS Walk for Life t-shirt design!

We can’t wait to see everyone proudly wearing it at the event. The winning design reflects the spirit and unity of our ALS community, and we’re excited for you to show it off on walk day.

Remember, to receive a Walk t-shirt, you need to raise at least $100. Let’s work together to hit those fundraising goals and make this year’s Walk the best one yet!

This week: Your ALS care, your voice

Don’t miss our upcoming ALS Learning Series webinar on Thursday, Aug. 29, at 12 PM CST.

Join palliative care experts Dr. Ambereen Mehta and Dr. Suzana Makowski as they provide essential guidance on self-advocacy and effective communication with your ALS health team.

This live session is designed for people living with ALS, their families, and care partners. Gain practical strategies to ensure your needs are met and your voice is heard, promoting a team-based approach to care.

The Les Turner ALS Foundation offers this valuable webinar at no cost to the ALS community, thanks to the support of the Gilbert & Jacqueline Fern Foundation and Mitsubishi Tanabe Pharma America. Secure your spot today and empower yourself with the knowledge to guide your ALS journey.

Guide Spotlight: ALS & Relationships, Sex and Intimacy

Navigating physical and emotional intimacy can be challenging for people living with ALS and their partners. Our comprehensive ALS Guide for Relationships, Sex, and Intimacy is designed to address these sensitive topics with empathy and understanding. The guide offers practical advice and insights to help couples maintain closeness, communicate effectively, and adapt to changes in physical abilities.

Whether you’re newly diagnosed or further along in your journey with ALS, this guide provides valuable resources to support your emotional and physical well-being. It emphasizes the importance of open communication and offers strategies for fostering intimacy in a way that respects the needs and desires of both partners.

Access the guide today to explore ways to strengthen your relationship and maintain connection during your ALS journey.

Are you running the Chicago Marathon?

The 2024 Bank of America Chicago Marathon is fast approaching on Saturday, Oct. 13. Although our team spots are sold out, you can still join us and raise funds for people living with ALS if you already have your own marathon entry. Simply select “I have an entry” during registration.

The Chicago Marathon is one of the world’s premier races, with a scenic course that takes runners through 29 diverse neighborhoods, showcasing the city’s vibrant culture and iconic landmarks. Whether you’re chasing a personal best or just soaking in the atmosphere, you can make every mile count by supporting the ALS community.

Even without a reserved spot on our team, you can make a difference for the ALS community. Click the link below to learn how!