Deciding whether to participate in clinical research is a pivotal step for people living with ALS and their families. It’s a process often filled with important questions about risks, benefits, and expectations. Clear and reliable information is essential to empower individuals during this decision-making journey.
To provide this guidance, we’re proud to introduce the latest module in our My ALS Decision Tool™: Participating in Clinical Research.
Developed in collaboration with NEALS (Northeast Amyotrophic Lateral Sclerosis Consortium®) and the ALS community, this module equips individuals and their care teams with tools to understand the clinical research landscape and make informed choices.
What This Tool Offers:
- An overview of clinical research, including trial phases, study types, and participant roles.
- Answers to key questions about safety, accessibility, and how research aligns with personal treatment plans.
By increasing accessibility and breaking down barriers to participation, this tool helps diversify ALS studies, enriching research and accelerating breakthroughs in treatment and care.
Whether you’re exploring clinical research for the first time or supporting someone through the decision-making process, this tool offers clarity and confidence.
Explore the Tool and additional resources to support you on your ALS journey. Together, we can advance ALS research and improve lives.
