An ALS diagnosis can change someone’s life overnight. Becoming an ALS caregiver, however, is a role and an identity that you grow into. Caring for a loved one with ALS can be extremely challenging, but it can also be very …
Letter: The Neuromuscular Disease Community Supports Swift Enactment of the FAA Reauthorization Act of 2024
Letter sent to Congress on May 3, 2024 Dear Speaker Johnson, Minority Leader Jeffries, Majority Leader Schumer, and Minority Leader McConnell; In service of the approximately 300,000 Americans living with a neuromuscular disease, for whom we collectively serve, the undersigned …
Harnessing the power of stem cells to find the drivers behind sporadic ALS
To better understand the molecular mechanisms that underlie ALS, researchers at the Les Turner ALS Center at Northwestern Medicine are harnessing the power of one of the 21st century’s most powerful medical tools: stem cells. In the lab of Evangelos …
How ALS is linked to the body’s circadian rhythms
Many people living with ALS find that their sleep is disrupted. But that disruption of their body’s 24-hour circadian rhythms might not just be a symptom of the disease. Researchers have found that this disrupted sleep actually contributes to the …
Hope Through Caring Silent Auction is Live
Our Silent Auction is Live! Whether you’re a sports fan eager to feel the electric energy of a live game, an adventurer looking for an unforgettable escape, or an art lover desiring to enhance your space with beautiful pieces, our Hope …
Understanding the connection between the immune system and ALS
Using cutting-edge techniques, researchers at the Les Turner ALS Center at Northwestern Medicine are working to test an innovative hypothesis: that the immune system is involved in the breakdown of the connection between the brain and muscles in people with …
Up to the Challenge: The Hernandez Family
Caring makes the difference. For Mario Hernandez, it starts with his daughters Jenny and Emily. “My daughters are two angels that God gave me, to support me in this moment of what I’m going through right now,” says Mario. “I …
5 Tips for Eating with ALS
It’s never too early to focus on your diet after an ALS diagnosis. It’s important to note that it takes more energy to move and breathe with ALS, so you’re burning more calories at rest than people who do not …
The Keldani Family Fights On
[wonderplugin_video iframe=”https://www.youtube.com/watch?v=DWGrWh0VXxo” lightbox=0 lightboxsize=1 lightboxwidth=960 lightboxheight=540 autoopen=0 autoopendelay=0 autoclose=0 lightboxtitle=”” lightboxgroup=”” lightboxshownavigation=0 showimage=”” lightboxoptions=”” videowidth=600 videoheight=400 keepaspectratio=1 autoplay=0 loop=0 videocss=”position:relative;display:block;background-color:#000;overflow:hidden;max-width:100%;margin:0 auto;” playbutton=”https://lesturnerals.org/wp-content/plugins/wonderplugin-video-embed/engine/playvideo-64-64-0.png”] Susan Keldani won’t slow down. At the age of 60, she’s a prolific fundraiser for ALS care …
Relyvrio/AMX0035 Phase 3 Clinical Trial Results Announced
UPDATE: Amylyx Pharmaceuticals has announced that Relyvrio will be removed from the market, and that patients on the therapy as of April 4 in the U.S. and Canada who, in consultation with their physician, wish to continue can be transitioned …
