22nd Annual ALS Walk for Life Kickoff We are thrilled to announce the upcoming 2023 ALS Walk for Life, the largest ALS gathering in the Midwest! This highly anticipated event brings together thousands of individuals, families, and teams who share a common …
May 2023 Foundation eNews
ALS Awareness Month: Supporting Our Veterans ALS Awareness Month is just about to wrap up. Over the past few weeks we’ve been highlighting different themes, ranging from information about ALS itself to shining a spotlight on members of our community. This …
Nearly $1 Million in ALS Grants Awarded for 2023
In 2023, the Les Turner ALS Foundation is funding nearly $1 million in ALS research grants and clinic and endowment support at the Les Turner ALS Center at Northwestern Medicine. This is the second year in a row that funding …
May 2023 Foundation eNews
ALS Awareness Month: Celebrating nurses As ALS Awareness Month continues, we’re taking the opportunity to celebrate the nurses who make an enormous difference for people living with ALS. We can’t possibly thank nurses enough for the care they provide. If you feel …
Lois Insolia ALS Clinic Opens Enrollment for New HEALEY ALS Platform Trial Regimen
The Lois Insolia ALS Clinic at the Les Turner ALS Center at Northwestern Medicine is now an active site for Regimen F of the HEALEY ALS Platform Trial. The focus of Regimen F is ABBV-CLS-7262, an investigational product being developed …
Announcing the ALS Newly Diagnosed Support Series
An ALS diagnosis is difficult to process. People often feel shocked and isolated by the news, whether the diagnosis was for themselves or a family member. It’s hard to move forward or figure out what comes next. “For many people, …
May 2023 Foundation eNews
ALS Awareness Month: Take action! May is ALS Awareness Month, a terrific opportunity to share your commitment to ALS care and research with friends and colleagues. All month, we’ll be sharing ideas to help you make an impact and highlighting people …
Illinois proclaims ALS Awareness Month, recognizes Les Turner ALS Foundation
Gov. J.B. Pritzker has proclaimed May as ALS Awareness Month in the State of Illinois, recognizing the care and support that the Les Turner ALS Foundation provides for people living with ALS and their families. The full proclamation can be …
Introducing My ALS Decision Tool™ on Genetic Testing for People Living with ALS
Launching today, the new My ALS Decision Tool™ on Genetic Testing is the first tool of its kind in the U.S. that focuses on genetic testing for anyone with ALS. It is designed to help people learn more about treatment options, …
FDA Approves tofersen (Qalsody™) for Treatment of SOD1-ALS
We are pleased that the FDA has granted accelerated approval to tofersen for treatment of SOD1-ALS. As the first FDA-approved treatment to target a genetic cause of ALS, this is a landmark moment for the ALS community. We are grateful …