September 2023 Foundation eNews

Ashley RosenbrockFoundation eNews, Home Page

The ALS Walk for Life is here!

The ALS community is coming together this Saturday, Sept. 23 at Soldier Field in Chicago. If you and your family have been affected by this terrible disease, there’s nothing like the experience of walking together for hope, walking for help, and walking for life.

“My biggest memory is seeing the ALS patients out there with the families, the inspiration of seeing them out there and not giving up. This is my best memory of the walk last year,” remembers Jessica Mullen of Team Donna.

The ALS Walk for Life is a two-mile stroll along the lakefront in Chicago, with live entertainment, food trucks, and more outside historic Soldier Field. It’s a chance to come together as a community to honor loved ones who are living with ALS and remember those we have lost.

Funds raised from the Walk go directly to providing comprehensive care and support to people living with ALS and their families, and advancing scientific research for the prevention, treatment, and cure of ALS.

There’s still time to register and start fundraising. We’ll see you at the start line at 10:30 a.m. on Saturday!


Thank You to Our Gracious Walk for Life Sponsors

A big thank you to all of this year’s ALS Walk for Life sponsors. Your ongoing support helps provide care and support for our ALS community and advance scientific research so that someday we will live in a world free of ALS.

Sponsors include the organizations featured above, as well as Prism Health Care Services, Baxter Hill-Rom, Chicago Bears, National Seating & Mobility, Integrated HSC, ResMed, Life Tech, Stewarts Coffee, Mercer Advisors, and Maxim Healthcare Services.

We’d also like to thank our media sponsors: ABC 7 Chicago, 93.9 LITE FM, and ROCK 95.5.

Join Us For the Celebration of Life

On Saturday, Nov. 18, we invite you to join us for a meaningful event that honors the memory of those we have lost to ALS. Led by Support Group Facilitator Anne Lidsky, PhD, this annual Celebration of Life will be a touching tribute.

Event Details:
Date: Saturday, Nov. 18
Time: 10:00 AM – 11:30 AM
Location: Online via Facebook Watch (Recording available for later viewing)

During the memorial, your loved one’s name and photo can be included in the presentation. Please submit these by Oct. 6 to ensure they are part of the ceremony. Cantor Adam Kahan will provide beautiful music to accompany the memorial.

This special service features readings by members of our Support Services Team and will be followed by a time of refreshments.

How You Can Participate:

Include your loved one’s name, all names will be read during the service. The deadline for name submission is October 16.

Together, we remember, honor, and find strength in community. We hope you’ll join us for this touching tribute.

 Guide Spotlight: ALS + Children

In the journey of ALS, children are impacted in profound ways. Our guide on Conversations with Children about ALS is here to help you navigate this challenging path.

When ALS enters a family’s life, children often sense more than we realize. Starting an open conversation is vital to dispel any misconceptions and fears. Being honest and direct reassures children that they are not to blame.

Begin the conversation sooner rather than later, using age-appropriate language. Encourage questions and keep the conversation open as the disease progresses. Acknowledge their emotions to create a safe space.

Children often play caregiving roles. Learn how to increase their confidence and provide support, ensuring their well-being.

The Les Turner ALS Foundation stands with you. For more resources and support, read the full guide at the link below: