December 2020 Foundation eNews

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Be a Giver this Giving Tuesday

This holiday season, your tax-deductible gift provides life-changing help to a person living with ALS. There is no better time to kick off your end of year giving than today, Giving Tuesday – the global day of giving.

Your gift gives our Les Turner ALS family the free Support Services they need to continue their fight against this disease and provides hope through scientific research at our Les Turner ALS Center at Northwestern Medicine.

Don’t close out 2020 without supporting your Les Turner ALS family. Be a Giver TODAY>>

ALS Learning Series: Clinical Trials 101 Webinar

Please join us for our second ALS Learning Series webinar, Clinical Trials 101 on Tuesday, December 8, at 12pm CST, featuring Benjamin Joslin, CCRC, clinical research project manager with Northwestern University’s Feinberg School of Medicine.

During this discussion, Benjamin will provide a basic understanding of ALS research and inform patients about how they can participate in clinical trials at our Lois Insolia ALS Clinic at the Les Turner ALS Center at Northwestern Medicine.

He will go over the different aspects of clinical trials and their definitions, including phase I, II, III, IV trials and observational studies. Benjamin will also focus on prescreening procedures at Northwestern Medicine, placebo-controlled trials, and will highlight the breakthrough Healey Platform Trial. Finally, he will discuss inclusion and exclusion criteria for enrollment in current and future clinical trials. Sign up to attend the Clinical Trials 101 webinar>>

Hope Through Caring Award Honoree

We are excited to announce Bob Ives as our 2021 Hope Through Caring Award honoree. Bob, who has lived with ALS since 2014, will be presented with the award at our virtual Hope Through Caring Gala on Saturday, March 20.

As an engineer and business owner, Bob has never backed down from a challenge. His tenacity was formed as a young lieutenant in the Army during the building of the Berlin Wall and the Cuban Missile Crisis.

Both these traits have served him well since his diagnosis. Bob and his wife, Mary, are active in our Chicago Support Group, and are dedicated donors to the Foundation’s Research and Support Services program.

Be sure you’ve saved the date, Saturday, March 20, 2021, for this annual affair. Stay tuned for ticket and sponsorship opportunities later this month. Read more about our upcoming Gala on page 5 of our Fall Newsletter>>