June 2025 Foundation eNews

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Get ready for the biggest ALS event in the Midwest

“This is a great event, there’s a DJ and things for kids to do. The location is great and helps bring out a crowd. I love the walk and the March of Faces. I got my dad on there the first year and we enjoy finding him there every year,” shares Alyssa Poniatowski from George’s Generals, the Walk team she leads in honor of her father George, who passed from ALS in 2019.

Each step we take is a step toward a world without ALS. On Saturday, Sept. 20, we’ll come together at Soldier Field along Chicago’s lakefront for a scenic two-mile walk filled with food, fun, music, and community.

By participating, you’re helping provide care and support to people living with ALS—and driving forward research in pursuit of new treatments and a cure.

Sign up today to walk, start a team, or support someone you love.


Lou Gehrig Day games were a grand slam!

Thank you to everyone who joined us at Rate Field and Wrigley Field for Lou Gehrig Day! This year marked our biggest combined turnout yet, and we’re so grateful for the energy, enthusiasm, and community you brought to both ballparks.

Both were days filled with fun, unity, and meaningful moments. At Wrigley, we all came together to sing “Take Me Out to the Ball Game” during the 7th inning stretch—an incredible reminder of the power of community.

Because of you, Lou Gehrig’s legacy lives on. Thank you for standing with us in the fight against ALS. Check out all the photos at the link below.


Set sail to support ALS care and research

Join the Les Turner ALS Foundation’s Young ProfessionALS Group for Cruisin’ for a Cure on Saturday, Aug. 9, from 9–10:30 pm! Set sail on a festive tiki boat along Chicago’s lakefront, complete with open bar, tropical vibes, and breathtaking skyline views—all capped off by a stunning fireworks show.

Boarding begins at 8:30 pm—don’t miss your chance to be part of this unforgettable summer evening.

Proceeds support the Foundation’s mission to provide care and support to people living with ALS and to advance critical research for a cure.

Spots are limited—reserve yours today and cruise for a cause!


Guide Spotlight: ALS + Mobility

As ALS progresses, it can affect balance, strength, and movement—making mobility more challenging over time. But with the right support and adaptive tools, people living with ALS can maintain greater independence, safety, and quality of life.

Our ALS & Mobility Guide offers practical advice to help you move through your day with more confidence. Learn how physical and occupational therapists can help you adapt your environment, how to manage falls, and when to consider mobility aids like canes, walkers, or wheelchairs.

Whether you’re navigating stairs or getting in and out of bed, small changes can make a big difference. Explore this guide to find tips that work for you or someone you care for.

Read the full guide, available in English and Spanish.


Join us Thursday, June 26 at 4 p.m. CT for our June ALS Learning Series webinar—a collaboration with the Healey Center Community Webinars. Catherine Small, Patient Navigator for the Healey ALS Platform Trial, will provide updates on the latest research and discuss the Acceleration Centers of Enrollment (ACE) initiative. Anne Marie Doyle from the Les Turner ALS Foundation will highlight resources and support available through the Foundation.

This program is available at no cost to the ALS community thanks to the Gilbert & Jacqueline Fern Foundation and Mitsubishi Tanabe Pharma America.

Register now to secure your spot.