Walk with us toward a world free from ALS
Get ready to lace up your sneakers and join the largest ALS gathering in the Midwest: the Les Turner ALS Foundation’s ALS Walk for Life! It’s more than just a walk—it’s a celebration of resilience, community, and hope. Together, we honor loved ones living with ALS, remember those we’ve lost, and raise critical funds to support ALS care and research.
This year, we’re excited to unveil an all-new website that makes it easier than ever to create or join a team, set your fundraising goals, and invite friends and family to be part of this incredible day. Whether you walk as an individual or with a team, every step you take brings us closer to a world free of ALS.
For ALS Awareness Month this May, we highlighted the challenges of living with ALS, from navigating diagnostic delays to understanding the financial impact of the disease. We celebrated folks across our community, from caregivers to those living with ALS, whose experiences shed light on the love, strength, and resilience that they show every day.
Our stories resonated beyond our community this month. AARP featured our insights on caregiving, while People Magazine shared the journey of Melissa Diaz-Viera, a mother navigating parenthood and an ALS diagnosis. These features help expand the reach of our mission to raise awareness and inspire action.
While May has ended, our commitment to those living with ALS continues year-round. Thank you for being part of our community. Let’s carry this momentum forward—together. Read and share these stories at lesturnerals.org.
We had a blast at Lou Gehrig Day with the Chicago White Sox!
A huge thank you to the 150 dedicated supporters who came out to Rate Field for Lou Gehrig Day! It was a special night honoring Lou Gehrig’s legacy and supporting ALS care and research.
From the camaraderie at the tailgate to cheering on the White Sox together, your presence made this event unforgettable. Every ticket purchased helped advance the mission of the Les Turner ALS Foundation, directly benefiting people living with ALS and their families.
We’re grateful to have shared this evening with you—and we’re inspired by the community that continues to come together to raise awareness and fund vital research and care.
The White Sox even teamed up with Live Like Lou, an ALS charitable organization, to gift Kenny Moore a brand new, custom wheelchair — watch the story on NBC here.
Call for Applications: 2025 NEALS Clinical Research Institute
We’re excited to announce that the 2025 NEALS Clinical Research Learning Institute (CRLI) will be held Oct. 6–7 in Clearwater, Florida. This two-day, in-person program empowers participants to become ALS Research Ambassadors, equipped to influence and improve the ALS research landscape.
The CRLI provides an opportunity for people living with ALS, caregivers, and family members to gain insights into clinical research and the therapy development process. Participants will also interact with leaders in the field of ALS research, learn about ongoing studies, and explore how their voices can drive progress.
NEALS will cover travel expenses and one night’s hotel stay for selected applicants.
The application deadline is July 14, and is open to North American applicants who have not previously attended a CRLI. For more information or questions, please contact Christina Smith at csmith@neals.org or 617-318-7976.
Join us Thursday, June 26 at 4 p.m. CT for our June ALS Learning Series webinar—a collaboration with the Healey Center Community Webinars. Catherine Small, Patient Navigator for the Healey ALS Platform Trial, will provide updates on the latest research and discuss the Acceleration Centers of Enrollment (ACE) initiative. Anne Marie Doyle from the Les Turner ALS Foundation will highlight resources and support available through the Foundation.
This program is available at no cost to the ALS community thanks to the Gilbert & Jacqueline Fern Foundation and Mitsubishi Tanabe Pharma America.
Register now to secure your spot.
