Highlighting our community this ALS Awareness Month
As ALS Awareness Month draws to a close, we’re continuing to highlight the lived experiences of people affected by ALS. In the second half of May, we’re focusing on two powerful themes:
— The financial impact of ALS, including Frank Granata’s story
— A day in the life of a caregiver, with reflections from Mike Margelewski-Hall and Trevor Storm
These stories offer a deeper look into the challenges ALS families face each day — and the strength and commitment it takes to meet them.
There’s more to come before the month ends. We invite you to read these stories, share them widely, and help shine a light on the ALS experience.
Together, we raise awareness — and build momentum for change.
ALS research is at risk — you can help
Exciting research is underway at the Les Turner ALS Center at Northwestern Medicine, where scientists are making strides toward uncovering the causes of ALS and developing treatments for neurodegenerative diseases. But federal funding delays and sudden stop-work orders are threatening to stall this critical progress.
Your support today can keep research moving forward.
Recent breakthroughs — including the development of the experimental drug NU-9 and the approval of QALSODY, the first genetic treatment for ALS — happened because of consistent support from people like you.
Your donation helps fund research, purchase lab supplies, and ensure access to clinical trials and expert care at the Lois Insolia ALS Clinic. This work can’t wait — and people living with ALS have no time to lose.
Donate today and help protect ALS research and care.
Join us and the White Sox for Lou Gehrig Day
Every summer, Major League Baseball honors Lou Gehrig’s legacy with games across the country — and we’d love for you to join us for a special night in Chicago.
On Monday, June 2, come out to Rate Field on the South Side of Chicago as the White Sox take on the Detroit Tigers. A portion of each ticket sold will directly support ALS care and research through the Foundation.
Seats are in Sections 109 and 110. Be sure to stop by our tailgate starting at 4 p.m. in Tailgate Pad A, Parking Lot E.
All attendees will receive an exclusive Les Turner ALS Foundation Lou Gehrig Day t-shirt.
Pushing for ALS Funding at the State Capitol in Springfield, IL
On May 22, the House Appropriations – Health & Human Services Committee in Springfield held a hearing on HB 4026, a bill that would provide $300,000 in state funding for ALS care and research.
Thank you to everyone who submitted witness slips, shared personal stories, and spoke up in support of this vital funding. Special thanks to Elizabeth Kennedy abd Rob Akins for their testimony and to Representative Kevin Olickal for sponsoring this bill. We’re also grateful to the committee members for taking time to learn more about what it’s like to live with ALS.
As state legislators move into the final days of budget negotiations, your voice is more important than ever. Please take a moment to share how ALS has impacted you or your loved ones. Together, we can continue fighting for the support families urgently need.
Thank you for supporting the Lew Blond Run!
We’re so grateful to everyone who came out for this year’s Lew Blond Memorial 5K Run/Walk. Your energy, generosity, and spirit helped honor Lew Blond’s legacy while making a meaningful impact on people living with ALS.
Thanks to the participation of 600 runners and walkers like you, we raised $25,000! These funds will go directly toward ALS care and research through the Les Turner ALS Foundation.
From the main race to the Little Lew Dash, the day was full of heart, movement, and community.
