November 2025 Foundation eNews

All in for ALS Casino Night was a blast!

Relive the excitement of our 19th Annual All in for ALS Casino Night, hosted by our Young ProfessionALS Group (YPG). Thanks to our incredible community, the event was a big success, bringing together friends, colleagues, and supporters for an evening of casino games, silent auction bidding, and meaningful connection in honor of those affected by ALS.

Funds raised from the night help fuel the Les Turner ALS Foundation’s mission to provide expert clinical care, compassionate support services, and advance innovative ALS research at the Les Turner ALS Center at Northwestern Medicine.

Want to revisit the fun—or see what you missed? Check out photos from the evening on our Flickr page and share your favorites with friends and family.

Join us for a webinar with Astrid Grouls, MD, as she examines a challenge many people living with ALS face every day: the financial burden of disease.

Dr. Grouls will outline how financial burden research in ALS has evolved, compare it to the more established field of financial toxicity research in oncology, and highlight what recent studies reveal about the lived economic impact of ALS. She’ll also discuss emerging areas of inquiry and the unanswered questions researchers are working to address.

This webinar is offered at no cost to the ALS community, thanks to support from the Gilbert & Jacqueline Fern Foundation and Mitsubishi Tanabe Pharma America.

Register today and join the conversation.

Guide Spotlight: ALS & Caregiver Self-Care

Caring for someone living with ALS can be meaningful and deeply rewarding — but it also comes with emotional, physical, and logistical demands that can lead to burnout. Our ALS & Caregiver Self-Care Guide offers practical strategies to help caregivers protect their well-being while continuing to provide compassionate support.

Inside the guide, you’ll find tips for recognizing early signs of burnout, building a realistic support system, and integrating self-care practices into daily routines. The guide also highlights mind-body tools, ways to stay connected, approaches for asking for help effectively, and resources for respite care, mental health support, home health services, and community groups.

Whether you’re new to caregiving or navigating long-term responsibilities, this guide provides encouragement, clarity, and actionable steps to help you care for yourself as you care for someone you love.

Read the full guide on our website, available in English and Spanish.

In Our Thoughts

We offer our sincere condolences to all those who have lost a loved one to ALS. Today, and every day, we honor and remember them.

John Hall
Brian Montigney
Mike Ring

We invite you to share a tribute—whether a story, memory, or photo— to our Celebration of Life memorial wall, keeping the legacy of your loved one alive and reminding others they are never forgotten.

Support ALS Care and Research

The Les Turner ALS Foundation exists to care for those affected by the disease, answer their questions, support them and their loved ones, and provide hope through scientific research at the Les Turner ALS Center at Northwestern Medicine.

Please make a gift so we can continue to deliver that care and support. Together, we will create a world free of ALS.