Below you'll find a list of all posts that have been tagged as “als community”
22nd Annual ALS Walk for Life Kickoff We are thrilled to announce the upcoming 2023 ALS Walk for Life, the largest ALS gathering in the Midwest! This highly anticipated event brings together thousands of individuals, families, and teams who share a common …
ALS Awareness Month: Supporting Our Veterans ALS Awareness Month is just about to wrap up. Over the past few weeks we’ve been highlighting different themes, ranging from information about ALS itself to shining a spotlight on members of our community. This …
ALS Awareness Month: Celebrating nurses As ALS Awareness Month continues, we’re taking the opportunity to celebrate the nurses who make an enormous difference for people living with ALS. We can’t possibly thank nurses enough for the care they provide. If you feel …
ALS Awareness Month: Take action! May is ALS Awareness Month, a terrific opportunity to share your commitment to ALS care and research with friends and colleagues. All month, we’ll be sharing ideas to help you make an impact and highlighting people …
Foundation News The first ALS Walk for Life team to register is… We are so excited to be back at Soldier Field for the ALS Walk for Life on Saturday, Sept 23! Congratulations to Hursh Power for being the first team to sign up …
Foundation News Note from the CEO Next week, the Les Turner ALS Foundation will welcome its new CEO, Laura Freveletti. I’m thrilled for Laura and the Foundation and will work closely with her, our board, staff and our many partners to …
Jessica Morris always knew there was a possibility that she might carry the SOD1-ALS gene and eventually get ALS, but she never dwelled on it, keeping busy with her three children – Aidan, Christopher and Mia. In 2020, she began …
Foundation News Tune in tomorrow: FDA meeting on tofersen The U.S. Food and Drug Administration (FDA) will hold an advisory committee meeting on Wednesday, March 22 to review Biogen’s New Drug Application for accelerated approval of tofersen, a treatment for …
“When I was told that Lester had ALS, I couldn’t even pronounce the word,” said Ina Turner Jones. “I don’t remember what I ate for lunch yesterday, but I remember the doctor’s speech verbatim.” Ina Turner Jones, widow of Les …
Jayanthy Thiagarajah was a fiercely independent woman and a devoted grandmother. In early 2021, having recently lost her husband, Jayanthy was still in mourning when she took a couple of nasty falls that required medical attention. She lived in Boston, …
