As connecting fibers between motor neurons, axons help deliver vital messages between the brain and the spinal cord. For people living with ALS, deteriorating axons cause that connection to break, contributing to paralysis and death. Early research on NU-9, an …
Breaking News: FDA Approves Oral Edaravone
This story has been updated with a link to the informational webinar about the new medication. The U.S. Food and Drug Administration has approved RADICAVA ORS®, an oral form of edaravone that reports the same efficacy as RADICAVA® for intravenous infusion. …
Faces of ALS: Remembering Marshall Krolick – One of the Foundation’s Founding Members
When Marshall Krolick passed away in February, the Les Turner ALS Foundation lost one of its longest-standing family members and biggest supporters. As a close friend of Les Turner, for whom the Foundation is named, Marshall was at the hospital …
May 2021 Events eNews
Strike Out ALS 5k and 1 Mile Registration Open Summer is just around the corner and that means our Strike Out ALS 5k and 1 Mile Run, Walk & Roll is too! Just like last year, our virtual format offers …
Faces of ALS: A New Addition to our Support Services Committee
For over 30 years, Cheryl Gallagher traveled the world as a flight attendant for United Airlines. From India to New Zealand, and Cambodia to Vietnam, she reveled in the opportunity to explore new places, take in fresh perspectives and immerse …
April 2021 Events eNews
#TakeaBreath During ALS Awareness Month in May Be a part of our new #TakeaBreath Campaign this coming May for ALS Awareness Month to honor and recognize the resiliency of people with ALS, for whom breathing can be a daily challenge. …
Tagging So Others Can Take a Breath
May is ALS Awareness Month. Every year, members of our Les Turner ALS family volunteer in our annual Tag Days Drive to spread the message of hope and help and raise funds to support people living with ALS and their …
March 2021 Events eNews
Last Call for Gourmet Dinner Delivery with our Hope Through Caring Gala The 2021 Virtual Hope Through Caring Gala is less than two weeks away on Saturday, March 20! Don’t miss out on a spectacular evening to create a world …
Faces of ALS: Working to Make True on a Wish
When Jonathan Brent, MD, PhD, asks his ALS patients what their goals are, the answer is almost always the same: to find a cure for ALS. “What motivates me,” says Dr. Brent, “is how I can make true on that …
February 2021 Events eNews
Hoops & Hope Time to dress in your favorite team’s jersey because the NCAA Bracket Challenge for Charity hosted by the Young ProfessionALS Group is back! The Bracket Challenge is an exciting few weeks about having fun, competing against one …