The U.S. Food and Drug Administration (FDA) will hold a second public advisory committee meeting on September 7, 2022 to discuss new data about the safety and efficacy of AMX0035, a new treatment for ALS from Amylyx Pharmaceuticals. Following this …
August 2022 Foundation eNews
Foundation News Show Your Support at the ALS Walk for Life on September 24! The ALS Walk for Life brings together thousands of people…and among them are thousands of incredible stories. Lori couldn’t wait to return to the Walk …
Faces of ALS: Michelle Gutierrez — Batting Against ALS
Michelle has been a lifelong Chicago White Sox fan. But when she went to a Sox game in June, she saw something that left her in disbelief. Prior to her ALS diagnosis, Michelle and her longtime partner Sue led an …
Les Turner ALS Foundation CEO named to NIH ALS Strategic Plan Working Group
Andrea Pauls Backman, chief executive officer of the Les Turner ALS Foundation, has been invited by the U.S. National Institute of Neurological Disorders and Stroke (NINDS) to serve as a working group member on its ALS Strategic Planning Team and …
July 2022 Foundation eNews
Foundation News Gather up your teams – it’s time to walk! Registration for this year’s ALS Walk for Life is open! Join the Les Turner ALS family on Saturday, Sept. 24 at Soldier Field for our largest gathering of …
FDA grants priority review for new SOD1-ALS treatment
The U.S. Food and Drug Administration (FDA) has accepted a New Drug Application for tofersen, a drug in development by Biogen for treatment of superoxide dismutase 1 (SOD1) amyotrophic lateral sclerosis (ALS) – and granted priority review for the application. …
Faces of ALS: Renato
For Renato, despite having been a successful business owner and a politician, his family came first – even after his ALS diagnosis. Caring for his family and specifically his wife was his top priority. As many of us know, being …
July 2022 Foundation eNews
Foundation News The Foundation represents the European Network to Cure ALS (ENCALS) In June, our CEO, Andrea Pauls Backman, attended the European Network to Cure ALS (ENCALS) conference in Edinburgh, Scotland, along with 650 ALS/MND researchers, patients, and advocates. …
Faces of ALS: Frank Granata
Faces of ALS: Frank Granata – Staying active and enjoying life As a finance executive, Frank Granata often traveled for business. In 2018, after having lived in India for two years for a work assignment, Frank began having neurological issues …
ALS Organizations Unite in Support of AMX0035 Approval
People living with ALS have no time to waste. The FDA must act urgently on new therapy approval. Amyotrophic lateral sclerosis (ALS) is a horrific neurodegenerative disease that affects over 30,000 Americans. It kills so swiftly that people with ALS …
