June 2023 Foundation eNews

Ashley RosenbrockFoundation eNews, Home Page

22nd Annual ALS Walk for Life Kickoff

 

We are thrilled to announce the upcoming 2023 ALS Walk for Life, the largest ALS gathering in the Midwest! This highly anticipated event brings together thousands of individuals, families, and teams who share a common goal of honoring those living with ALS and commemorating the lives of our cherished ones who have passed away.

Together, we unite as a resilient community to work toward a world free of ALS.

On Sept. 23, we invite you to join us for a two-mile stroll along the picturesque lakefront of Chicago. The journey will culminate with an unforgettable experience as we traverse the historic Soldier Field.

Walking side by side, hand in hand, we will embody the spirit of compassion and support that defines The Les Turner ALS Foundation.

By participating in the ALS Walk for Life, you become an integral part of our mission to provide comprehensive care and support to individuals and families affected by ALS. The funds you raise through this event will be directly channeled toward advancing scientific research for the prevention, treatment, and cure of ALS, while also empowering individuals to confidently navigate the challenges that accompany this disease.

 Honor Your Loved One in the March of Faces

March of Faces banner

This year, honor your loved one by featuring them on a March of Faces banner, which will be showcased at the ALS Walk for Life alongside banners from previous years dating back to 2003.

The March of Faces is a powerful visual tribute to the brave individuals, past and present, who have been affected by ALS. Originated by Kyle Hahn in 1997, this initiative serves as both an advocacy tool and a means to raise awareness.

These meaningful banners travel with the Foundation, making appearances at various events throughout the year, including the ALS Walk for Life. By submitting the names and photos of your loved ones, you not only pay tribute to them, but also contribute to global awareness through the International Alliance of ALS/MND Associations. Participating in the March of Faces is completely free, although donations to support our mission of defeating ALS are greatly appreciated.

Don’t miss the opportunity to include your loved one in this poignant display. The submission deadline is August 22. Join us in honoring their memory and making strides towards a world without ALS.

 

 

 We Celebrate “The Iron Horse” and Our Community with the White Sox and Cubs

LG Day Chicago White Sox

Over 70 folks came out to attend the Chicago White Sox vs. Detroit Tigers game at Guaranteed Rate Field on Friday, June 2. We had a phenomenal time watching the Sox kick-off a 3-game sweep of the Tigers.
This was the first of two games this year where we’re celebrating the legacy of Lou Gehrig as a champion of people living with ALS. Learn more about his legacy and the upcoming MLB celebration with the Chicago Cubs.

 

 

 

Chicago Cubs vs. Pittsburgh Pirates

Location: Wrigley Field

Seat Section: 206
Date & Time:
Thursday, June 15 at 7:05 pm CT

 

 

 Les Turner Symposium on ALS

 

Join us for the highly anticipated Les Turner Symposium on ALS, taking place both virtually and in-person at Northwestern Memorial Hospital in Chicago on Monday, Nov. 6th.

Experience an extraordinary gathering where leading ALS scientists, clinicians, and individuals living with ALS come together to share groundbreaking presentations. Engage in thought-provoking discussions, explore captivating research material, and participate in an interactive Q&A panel. The Les Turner Symposium on ALS offers a unique opportunity for education and collaboration.

Stay tuned for details, registration and abstract submissions open this July.

 Grants that make a difference

Grant recipient at walk

The Les Turner ALS Foundation offers several grant programs to help provide financial assistance, independence and empowerment for people living with ALS. In 2022, we funded nearly 80 grants – made possible by our generous donors.

The Walter Boughton Foundation Support Services Grant Program offers financial assistance to people with ALS to help cover a portion of the cost of certain equipment and necessary home modifications not covered by insurance.

The Assistive Technology Grant offers accessible technology to help people living with ALS communicate, control their environment and meet their care needs.

The Dan Nelson Respite Grant Program offers financial reimbursement to people with ALS, who demonstrate financial need to help offset the cost of respite care. This grant offers needed relief to family caregivers who report high levels of physical and emotional stress.

The Stuart Rosen ALS Transportation Fund helps provide transportation to and from the Lois Insolia ALS Clinic.