Faces of ALS: Raising his voice in advocacy for ALS

Ashley RosenbrockFaces of ALS, Home Page

Rob Faulstich’s advocacy journey began when his sister-in-law, Diane Costello, was diagnosed with ALS in late 2018. “Prior to Diane’s diagnosis, she had difficulty walking and was tripping frequently going up stairs and curbs,” says Rob. “When she sought treatment …

Les Turner ALS Foundation CEO named to NIH ALS Strategic Plan Working Group

lesturnerAdvocacy, Foundation Blog, Home Page

Andrea Pauls Backman, chief executive officer of the Les Turner ALS Foundation, has been invited by the U.S. National Institute of Neurological Disorders and Stroke (NINDS) to serve as a working group member on its ALS Strategic Planning Team and …

NU-9 Update: Experimental drug repairs upper motor neurons in mouse model

lesturnerFoundation Blog, Home Page, Research News

As connecting fibers between motor neurons, axons help deliver vital messages between the brain and the spinal cord. For people living with ALS, deteriorating axons cause that connection to break, contributing to paralysis and death. Early research on NU-9, an …

March 2021 Foundation eNews

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Newly Discovered Compound Found to Reverse ALS Neuron Damage “We have identified the first compound that improves the health of upper motor neurons that become diseased,” shares Hande Ozdinler, PhD, senior author of the study along with Richard B. Silverman, …

Drs. Jonathan Brent and Senda Ajroud-Driss converse in a hallway.

Faces of ALS: Working to Make True on a Wish

lesturnerAdvocacy, Faces of ALS, Home Page

When Jonathan Brent, MD, PhD, asks his ALS patients what their goals are, the answer is almost always the same: to find a cure for ALS. “What motivates me,” says Dr. Brent, “is how I can make true on that …