Together with the Sean M. Healey & AMG Center for ALS at Massachusetts General Hospital, the Les Turner ALS Center at Northwestern Medicine is thrilled to announce the launch of the Acceleration Centers of Enrollment (ACE) initiative. The ACE initiative …
‘New’ ALS gene destabilizes neuron’s structure and chokes off its nucleus
As many as 2% of all ALS cases have been linked to mutations in the gene NEK1, making it one of the top-known causes of the disease. But it wasn’t known how the mutated gene disrupts the function of the …
July 2023 Foundation eNews
Future ALS Walk for Life Captains in the Making Our ALS Walk for Life team captains play a vital role in the event’s success. They tirelessly recruit teammates and raise funds through various channels, including emails, phone calls, and social …
June 2023 Foundation eNews
22nd Annual ALS Walk for Life Kickoff We are thrilled to announce the upcoming 2023 ALS Walk for Life, the largest ALS gathering in the Midwest! This highly anticipated event brings together thousands of individuals, families, and teams who share a common …
May 2023 Foundation eNews
ALS Awareness Month: Supporting Our Veterans ALS Awareness Month is just about to wrap up. Over the past few weeks we’ve been highlighting different themes, ranging from information about ALS itself to shining a spotlight on members of our community. This …
May 2023 Foundation eNews
ALS Awareness Month: Celebrating nurses As ALS Awareness Month continues, we’re taking the opportunity to celebrate the nurses who make an enormous difference for people living with ALS. We can’t possibly thank nurses enough for the care they provide. If you feel …
May 2023 Foundation eNews
ALS Awareness Month: Take action! May is ALS Awareness Month, a terrific opportunity to share your commitment to ALS care and research with friends and colleagues. All month, we’ll be sharing ideas to help you make an impact and highlighting people …
September 2022 Foundation eNews
Foundation News ALS Walk for Life, Saturday, September 24! If this is your first ALS Walk for Life, you’re not alone. Suzanne will be participating in the Walk for the first time – and walking in memory of her …
Faces of ALS: Michelle Gutierrez — Batting Against ALS
Michelle has been a lifelong Chicago White Sox fan. But when she went to a Sox game in June, she saw something that left her in disbelief. Prior to her ALS diagnosis, Michelle and her longtime partner Sue led an …
AMX0035 May Slow ALS Progression and Extend Life
On September 15, Amylyx Pharmaceuticals announced its intention to submit a New Drug Application to the FDA for AMX0035 for the treatment of ALS. If the New Drug Application is successful, AMX0035 would be only the third drug approved by …
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