Special Feature on Support Groups As November is National Family Caregivers Month, this edition of ALS Event News focuses on support groups for people living with ALS and their families. The Les Turner ALS Foundation has long offered comforting …
Les Turner ALS Symposium Celebrates Advances in Research and Patient Care
BY MELISSA ROHMAN ON NOV 4, 2021 Northwestern scientists and clinicians demonstrated their continued commitment to advancing knowledge and therapies for amyotrophic lateral sclerosis (ALS) during the 11th annual Les Turner Symposium on ALS. The virtual, daylong symposium featured scientific presentations highlighting the molecular …
Biogen Briefing Notes – Scientific Advisory Council (SAC)
The following note is being passed along from the Board of Directors of the International Alliance of ALS/MND Associations… The Board of Directors of the International Alliance of ALS/MND Associations is pleased to provide information for Member Associations in the …
October 2021 Foundation eNews
FOUNDATION NEWS AMX0035 May Slow ALS Progression and Extend Life On September 15, Amylyx Pharmaceuticals announced its intention to submit a New Drug Application to the FDA for AMX0035 for the treatment of ALS. If the New Drug Application is …
AMX0035 May Slow ALS Progression and Extend Life
On September 15, Amylyx Pharmaceuticals announced its intention to submit a New Drug Application to the FDA for AMX0035 for the treatment of ALS. If the New Drug Application is successful, AMX0035 would be only the third drug approved by …
September 2021 Events eNews
There’s Still Time to Join the ALS Community at the ALS Walk for Life The forecast for Saturday’s ALS Walk for Life is abundant sunshine with widespread warmth. And the weather is expected to be nice too! Let’s thank …
Faces of ALS: Steve McMichael
Super Bowl Champion Steve ‘Mongo’ McMichael was diagnosed with ALS in January 2021. He points out, “It’s called Lou Gehrig’s Disease. I didn’t know that it was a metaphor too. ALS is going to run the bases on you.” Adding …
September 2021 Foundation eNews
ALS Walk for Life – Honoring Teams We will be celebrating our 20th Anniversary of the ALS Walk for Life on September 18. As we honor all teams, here’s a look at two – a team that has been with …
August 2021 Foundation eNews
The ALS Walk for Life is September 18 The 20th anniversary of our ALS Walk for Life is returning to Chicago’s lakefront on Saturday, September 18! Our signature event features a beautiful two-mile stroll along the lakefront and finishes at …
Les Turner ALS Foundation’s Andrea Pauls Backman Advocates for “Bold, Urgent Methods” to Improve Access to Potential ALS Treatments
In response to a recent congressional hearing focused on the slow pace of drug approvals for neurological diseases, Les Turner ALS Foundation’s CEO Andrea Pauls Backman spoke with Suz Redfearn, a reporter for FDA News. Andrea was quoted extensively in …