This Saturday, it’s go time!
Get ready for an inspiring and fun-filled day at the Les Turner ALS Walk for Life this Saturday, Sept. 14, at Soldier Field in Chicago! As the largest ALS event in the Midwest, the Walk brings together thousands of supporters—families, friends, and teams—united in the fight against ALS.
Whether you’re walking in honor of a loved one, a friend, or simply to support the ALS community, the ALS Walk for Life is more than just an ordinary event; it’s a celebration of hope, strength, and community. With food trucks, live entertainment, and activities for all ages, there’s something for everyone. The energy and camaraderie are contagious—you’ll feel uplifted and empowered by the sense of togetherness.
But the day isn’t just about fun; it’s about making a real difference. The funds raised at the Walk support the Les Turner ALS Foundation’s mission to provide comprehensive care and support to those living with ALS and to advance research for better treatments and a cure. Your participation helps raise critical awareness and funds that bring us closer to a world free of ALS.
The Les Turner ALS Foundation, in partnership with the Sean M. Healey & AMG Center for ALS at Massachusetts General Hospital, is excited to announce the launch of the Acceleration Centers of Enrollment (ACE) initiative. This groundbreaking program, the largest of its kind, aims to accelerate enrollment in ALS clinical research, increasing access to clinical trials and non-therapeutic studies for people living with ALS.
By funding staff, training, and infrastructure at both Northwestern and Mass General, the ACE initiative will pave the way for more efficient and accessible ALS research. As our CEO, Laura Freveletti, notes, “This program will pave the way for better treatments and longer, richer lives for those living with ALS.”
Join us for our next ALS Learning Series on health insurance, happening Thursday, September 19 at 12 PM CST.
Open Enrollment is a crucial time of year to review and select your health insurance plan. In our September ALS Learning Series webinar, we’ll discuss key factors to consider when choosing a new plan and how to make informed decisions about living with ALS. This session will also cover both commercial health insurance and Medicare options, offering valuable insights for navigating your healthcare coverage.
The Les Turner ALS Foundation is proud to provide this webinar at no cost to the ALS community, thanks to the generous support of the Gilbert & Jacqueline Fern Foundation and Mitsubishi Tanabe Pharma America.
We are excited to announce that our guide, ALS & Genetic Counseling and Testing for Family Members, is now available in Spanish.
This guide offers important information for families affected by ALS, including what to expect from genetic counseling, understanding genetic testing, and how to navigate conversations about genetic risk. With this new translation, we’re continuing to make our tools more accessible to Spanish-speaking families and ensure everyone has the resources needed to make informed decisions.
Read the guide by clicking the link.
Nos complace anunciar que nuestra guía, ELA y el Asesoramiento y las Pruebas Genéticas para los Miembros de la Familia ya está disponible en español.
Esta guía ofrece información importante para las familias afectadas por la ELA, incluyendo qué esperar del asesoramiento genético, comprender las pruebas genéticas y cómo manejar conversaciones sobre el riesgo genético. Con esta nueva traducción, continuamos haciendo que conocimientos cruciales sean más accesibles para las familias de habla hispana y asegurando que todos tengan las herramientas necesarias para tomar decisiones informadas.
Explora la guía hoy mismo haciendo clic en la liga.
We’re here to support you
Navigating the challenges of ALS can feel overwhelming, but you don’t have to face it alone. The Les Turner ALS Foundation offers free, virtual support groups throughout the year for people living with ALS, caregivers, and those grieving a loss. These groups provide a safe and supportive environment to share experiences, find comfort, and gain practical advice from peers who truly understand.
Our support groups are tailored to different needs, including groups for newly diagnosed individuals, caregivers, young adults affected by ALS, and bereavement support for those who have lost a loved one. Each session is led by professional facilitators who guide discussions, offer resources, and ensure a positive experience.
