Les Turner ALS Foundation Takes Action

lesturner Advocacy

The Les Turner ALS Foundation participated with The National Organization for Rare Disorders (NORD) in a letter writing campaign to urge Congress to reconsider repealing the Orphan Drug Tax Credit proposed by Chairman Dave Camp (R-Michigan). Together over 130 patient organizations and professionals …

FDA Conducts first-ever public hearing related to ALS

lesturner Advocacy

In February 2013, the U.S. Food and Drug Administration (FDA) conducted its first-ever public hearing specific to ALS. Patients, caregivers, physicians and researchers addressed a panel of representatives from the FDA. The ALS Association and MDA partnered together to represent the ALS …