As someone living with ALS or in contact with someone living with ALS, you should always take special precautions to safeguard your health and the health of those around you. People living with ALS are at an increased risk of respiratory problems …
April 2021 Events eNews
#TakeaBreath During ALS Awareness Month in May Be a part of our new #TakeaBreath Campaign this coming May for ALS Awareness Month to honor and recognize the resiliency of people with ALS, for whom breathing can be a daily challenge. …
April 2021 Foundation eNews
Grief & Loss in Children and Youth in Families with ALS: April ALS Learning Series Last month, our ALS Learning Series webinar focused on talking with children about ALS. This Thursday, April 8 at 12pm CST, Dr. Melinda Kavanaugh returns …
March 2021 Events eNews
Last Call for Gourmet Dinner Delivery with our Hope Through Caring Gala The 2021 Virtual Hope Through Caring Gala is less than two weeks away on Saturday, March 20! Don’t miss out on a spectacular evening to create a world …
March 2021 Foundation eNews
Newly Discovered Compound Found to Reverse ALS Neuron Damage “We have identified the first compound that improves the health of upper motor neurons that become diseased,” shares Hande Ozdinler, PhD, senior author of the study along with Richard B. Silverman, …
February 2021 Events eNews
Hoops & Hope Time to dress in your favorite team’s jersey because the NCAA Bracket Challenge for Charity hosted by the Young ProfessionALS Group is back! The Bracket Challenge is an exciting few weeks about having fun, competing against one …
February 2021 Foundation eNews
Therapeutic Potential for New ALS Drug According to a recent study published in JAMA Neurology, ezogabine, an experimental drug, is found to have potential therapeutic possibilities for ALS treatment. “Most importantly, ezogabine decreased cortical and spinal motor neuron excitability in …
January 2021 Events eNews
Become an ALS Research Ambassador Join our first-ever 2021 Chicago Virtual NEALS ALS Clinical Research Learning Institute (CRLI) online on February 20-21! The ALS CRLI is an annual two-day program dedicated to educating attendees on clinical research and therapy development …
January 2021 Foundation eNews
ALS Disability Insurance Access Act Signed into Law We are excited to announce that on December 22, the ALS Disability Insurance Access Act was signed into law, which waives the mandatory five-month waiting period for ALS patients to receive Social …
December 2020 Events eNews
Les Turner Symposium on ALS Recordings Available In case you missed any of our virtual 10th Annual Les Turner Symposium on ALS last month, presentation recordings are now available! We welcomed leading ALS clinicians and researchers from across the country …