Empowering through ALS Education We are excited to launch our new online learning series aimed at empowering our ALS community through the latest information and insights. Educational webinars and interactive Q&A’s covering a diverse array of topics, from telemedicine to …
October 2020 Foundation eNews
Join our 10th Annual Les Turner Symposium on ALS – Monday, November 9 Registration is now open for our 10th Annual Symposium, hosted by our own Les Turner ALS Center at Northwestern Medicine. This year’s event will be held virtually on …
September 2020 Foundation eNews
Join our 10th Annual Les Turner Symposium on ALS Registration is now open for our 10th Annual Symposium, hosted by our own Les Turner ALS Center at Northwestern Medicine. This year’s event will be held virtually on Nov, 9, and …
August 2020 Foundation eNews
New and Improved Clinical Trials Webpage While it may feel like much in life is on pause at the moment, there is exciting news in the ALS clinical trials and studies space, including information on the upcoming HEALEY ALS Platform …
Difficult Conversations Can Be Some of the Most Important
Making Your End-of-Life Wishes Known Author: Karen Raley Steffens, RN, CHPN, CCM ALS Support Services Coordinator “You may not control life’s circumstances but getting to be the author of your life means getting to control what you do with them.” …
How to Prepare for a Telehealth Visit
Due to the recent COVID-19 pandemic, many people, especially those living with ALS, have needed to change their routines in several ways including pivoting their medical appointments to telehealth visits. A recent article published in Brain & Life Magazine shared …
May 2020 Events eNews
Celebrating Our Heroic Nurses Nurses are heroes, plain and simple. And those of us in the ALS community know that nurses have always been essential. Despite this crisis, the amazing nurses at our Lois Insolia ALS Clinic at the Les …
May 2020 Foundation eNews
Be a Giver for #GivingTuesdayNow Today is #GivingTuesdayNow, a new global day of giving as an emergency response to the unprecedented impact of COVID-19. At the onset of the COVID-19 pandemic, we paused all in-person Support Service Team visits and …
April 2020 Events eNews
Tag for ALS From Home As you can see from our video, we’re doing Tag Days a bit differently this year. Since 1997, our Tag Days Drives have raised over $2 million to support people living with ALS and helped …
