January 2024 Foundation eNews

Ashley RosenbrockFoundation eNews, Home Page


Local Students doing their part to fight ALS

Last semester, students at Elk Grove High School completed a long-running fundraising project for the Les Turner ALS Foundation. Their teacher, Caryn Blanke, started this project 12 years ago with the help of Bob Lee, a resident of Barrington who was riding his bike across the country and fundraising for causes including ALS.

Over the last 12 years, students in the Introduction to Health Careers class have raised thousands of dollars for charities that are special to them.

“Each year, ALS continues to stay on our list of charities to choose from because it is one of the original sources of our project and the fuel that drives the desire to help others,” says Caryn. “Through our teamwork project, students learn about the charities they raise money for, they share stories of family and friends that are afflicted with various conditions, they learn empathy for others, and they learn what it means to be a team, focused on a specific goal.”

You too can have a positive impact on the lives of people living with ALS. Our Fundraise Your Way program can help you create a unique online fundraiser or plan your own in-person fundraising event. Get involved.

Deepen Your Commitment by Becoming a Sustainer for Hope

Become a driving force for change by joining our Sustainers for Hope program – a dedicated community where your monthly donations make a lasting impact on the lives of those affected by ALS. By becoming a part of this compassionate group, you’re not just donating; you’re actively participating in a movement that brings real change, every day, to individuals and families grappling with ALS.

Your commitment as a Sustainer for Hope enables us to take a strategic, long-term approach in our mission. Your support is vital in empowering the ALS community and providing hope where it’s most needed. As a Sustainer, you stand shoulder to shoulder with us in the fight against ALS, aiding in every facet of our mission: Education, Support, Care, and Research.

Save the Date: Hope Through Caring Gala 2024

Join us for an unforgettable evening at the Les Turner ALS Foundation’s 36th annual Hope Through Caring Gala! This prestigious event, a blend of elegance and purpose, will be held at the Radisson Blu Aqua Hotel on Saturday, April 13.

Enjoy a black-tie optional gathering that unites leaders in ALS research, business, and philanthropy. For those unable to attend in person, a virtual option with a program viewing link will be available.

Don’t miss this remarkable night of hope, solidarity, and fun.

Don’t Miss Out: Our January Learning Series Webinar Focuses on Genetic Testing

Join us Wednesday, Jan. 31 at 12:00 pm CST for A Conversation with a Genetic Counselor: Could the ALS in My Family be Genetic? This month’s webinar focuses on the vital topic of genetic testing in ALS care.

We are thrilled to host Laynie Dratch, ScM, CGC, a renowned genetic counselor. Laynie will delve into the genetics of ALS-FTD spectrum disorders, the genetic testing process, and will be answering your questions. This session promises to be both interactive and enlightening.

Act now and register for this can’t-miss opportunity to gain insights from an expert in the field. Bring your questions and be ready for an informative discussion!

Make Informed Decisions About Your Care

In our continued commitment to supporting those living with ALS, we’re highlighting a crucial piece of the My ALS Decision Tool™: the breathing section. This innovative tool, developed with contributions from people living with ALS, caregivers, and healthcare professionals, plays a pivotal role in helping individuals understand and navigate their breathing support options.

Many living with ALS experience difficulties in breathing, a challenge that can significantly impact daily life. Non-Invasive Ventilation (NIV) offers a supportive solution. The tool provides comprehensive insights into NIV, assisting in understanding when and how it can be beneficial. It addresses key symptoms like breathing trouble, fatigue, disrupted sleep, and morning headaches, which NIV can help alleviate.

Importantly, the tool is not just for those currently experiencing these symptoms. It’s a valuable resource for future planning, ensuring that every individual has the information needed to make informed decisions about their care.

We encourage all those affected by ALS to explore the breathing section of the My ALS Decision Tool™. Then, in collaboration with your ALS care team, you can determine the best treatment plan tailored to your needs.