Michelle has been a lifelong Chicago White Sox fan. But when she went to a Sox game in June, she saw something that left her in disbelief. Prior to her ALS diagnosis, Michelle and her longtime partner Sue led an …
Les Turner ALS Foundation CEO named to NIH ALS Strategic Plan Working Group
Andrea Pauls Backman, chief executive officer of the Les Turner ALS Foundation, has been invited by the U.S. National Institute of Neurological Disorders and Stroke (NINDS) to serve as a working group member on its ALS Strategic Planning Team and …
July 2022 Foundation eNews
Foundation News Gather up your teams – it’s time to walk! Registration for this year’s ALS Walk for Life is open! Join the Les Turner ALS family on Saturday, Sept. 24 at Soldier Field for our largest gathering of …
FDA grants priority review for new SOD1-ALS treatment
The U.S. Food and Drug Administration (FDA) has accepted a New Drug Application for tofersen, a drug in development by Biogen for treatment of superoxide dismutase 1 (SOD1) amyotrophic lateral sclerosis (ALS) – and granted priority review for the application. …
Faces of ALS: Renato
For Renato, despite having been a successful business owner and a politician, his family came first – even after his ALS diagnosis. Caring for his family and specifically his wife was his top priority. As many of us know, being …
July 2022 Foundation eNews
Foundation News The Foundation represents the European Network to Cure ALS (ENCALS) In June, our CEO, Andrea Pauls Backman, attended the European Network to Cure ALS (ENCALS) conference in Edinburgh, Scotland, along with 650 ALS/MND researchers, patients, and advocates. …
Donor Spotlight: Richard A. Perritt Charitable Foundation
Richard A. Perritt had a remarkable career. He performed eye surgeries on two popes and several international dignitaries, and he was responsible for several breakthroughs as an ophthalmologist. For 35 years, Ron Tyrpin served as his investment adviser. When Dr. …
Faces of ALS: Frank Granata
Faces of ALS: Frank Granata – Staying active and enjoying life As a finance executive, Frank Granata often traveled for business. In 2018, after having lived in India for two years for a work assignment, Frank began having neurological issues …
ALS Organizations Unite in Support of AMX0035 Approval
People living with ALS have no time to waste. The FDA must act urgently on new therapy approval. Amyotrophic lateral sclerosis (ALS) is a horrific neurodegenerative disease that affects over 30,000 Americans. It kills so swiftly that people with ALS …
Faces of ALS: Erin Reardon Cohn
We’re thrilled to welcome Erin Reardon Cohn, Executive Vice President of First Bank Chicago, to her new role as chair of the board of directors. Erin joined the board in 2019 and served as the Foundation’s treasurer for the last …
