Foundation News We’re in it Together at the ALS Walk for Life! The ALS Walk for Life, which will take place on Saturday, September 24 at Soldier Field, brings together thousands of walkers to create ALS awareness and raise …
Faces of ALS: Tackling Those Miles for Mitch
Marathon runners choose to run for a variety of reasons. Some love to run, enjoy the challenge, or want to cross off an item on their bucket list. Others are running for something – or someone – beyond themselves. Nathan …
August 2022 Foundation eNews
Foundation News Show Your Support at the ALS Walk for Life on September 24! The ALS Walk for Life brings together thousands of people…and among them are thousands of incredible stories. Lori couldn’t wait to return to the Walk …
Faces of ALS: Michelle Gutierrez — Batting Against ALS
Michelle has been a lifelong Chicago White Sox fan. But when she went to a Sox game in June, she saw something that left her in disbelief. Prior to her ALS diagnosis, Michelle and her longtime partner Sue led an …
July 2022 Foundation eNews
Foundation News Gather up your teams – it’s time to walk! Registration for this year’s ALS Walk for Life is open! Join the Les Turner ALS family on Saturday, Sept. 24 at Soldier Field for our largest gathering of …
July 2022 Foundation eNews
Foundation News The Foundation represents the European Network to Cure ALS (ENCALS) In June, our CEO, Andrea Pauls Backman, attended the European Network to Cure ALS (ENCALS) conference in Edinburgh, Scotland, along with 650 ALS/MND researchers, patients, and advocates. …
Donor Spotlight: Richard A. Perritt Charitable Foundation
Richard A. Perritt had a remarkable career. He performed eye surgeries on two popes and several international dignitaries, and he was responsible for several breakthroughs as an ophthalmologist. For 35 years, Ron Tyrpin served as his investment adviser. When Dr. …
June 2022 Events eNews
Event News Welcome New Strike Out Teams! One thing we look forward to at our community events is seeing all the new faces who get involved every year! We’re inspired by meeting the people who participate and form ambitious, dedicated …
June 2022 Foundation eNews
Foundation News The 34th Annual Hope Through Caring Gala: Reunited and it feels so good! Through your generous donations, we raised nearly $550,000 to support research, clinical trials, and, most of all, personalized care for people living with ALS. …
New results show promise in treatment of SOD1-ALS
New results from the Phase 3 clinical trial of tofersen, a drug in development by Biogen, have shown promise in treatment of superoxide dismutase 1 (SOD1) amyotrophic lateral sclerosis (ALS). According to the 12-month data, earlier initiation of treatment with …
