Chicago Bears legend and NFL Hall of Famer Steve McMichael died this week at the age of 67. We’ve been honored to support Steve and his family since his ALS diagnosis in 2021. When we presented Steve with the Les …
Letter to Congress: Preserve Funding for the National ALS Registry and Biorepository
The Honorable Members of the ALS Caucus United States Congress Washington, D.C. 20515 Subject: Urgent Action Needed to Preserve Funding for the National ALS Registry and Biorepository Dear Members of the ALS Caucus, We, the collective voice of the ALS …
3 Tips for People with ALS Applying for Social Security Disability Insurance
Applying for Social Security Disability Insurance (SSDI) can feel overwhelming. It’s important to know that the ALS Disability Insurance Access Act of 2019 eliminates the required five-month SSDI waiting period for ALS applicants. You can apply for SSDI benefits here. Bear …
April 2025 Foundation eNews
The Gala was a smash hit! With over 400 guests joining in person and virtually, the 37th annual Hope Through Caring Gala was a night to remember. Together, we raised $620,000 and counting to support compassionate ALS care, groundbreaking research, …
ALS drug effectively treats Alzheimer’s disease in new animal study
Experimental drug NU-9 — a small molecule compound approved by the U.S. Food and Drug Administration (FDA) for clinical trials for the treatment of amyotrophic lateral sclerosis (ALS) — improves neuron health in animal models of Alzheimer’s disease, according to …
April 2025 Foundation eNews
The Hope Through Caring Gala auction is live! Our Hope Through Caring Gala is this Saturday, April 5 at the Radisson Blu Aqua Hotel in Chicago, but our fabulous Gala auction is now open for early bidding. Place your bids today …
Leaning on Family, Faith, and Community
For Satrina Bryant-Higgins, family is everything. Her three children and three grandchildren are the center of her world. “We are all we have, and we have a great relationship,” she says. “Whenever I see my grandbabies, it brightens my whole …
$40M for ALS in FY25: A Hard-Earned Victory
We are grateful to share that ALS has been recommended by House and Senate Defense Appropriations leadership for $40 Million for Fiscal Year 2025 through the Congressionally Directed Medical Research Programs at the Department of Defense. U.S. military veterans are …
March 2025 Foundation eNews
Building community, creating impact At this year’s Hope Through Caring Gala, we recognize Brian Davis and Katy McNeil, whose generosity and dedication have strengthened the ALS community in lasting ways. When Brian was diagnosed with ALS on his 36th birthday …
ALS organizations advocate for FY26 funding priorities to Congress
Delivered to the offices of Sen. Susan Collins and Sen. Patty Murray on the U.S. Senate Committee on Appropriations, and the offices of Rep. Tom Cole and Rep. Rosa DeLauro on the U.S. House Committee on Appropriations. March 18, 2025 …
