Walking for my dad, and the ALS community This September, Alex Willard will walk for the first time in honor of his dad, Jim, who was diagnosed with ALS in 2023. “Our story isn’t a sad one,” Alex says. “It’s …
August 2025 Foundation eNews
No Quitters for Q: walking strong for 16 years Since 2009, Ninfa Queyquep has led her team, No Quitters for Q, at the ALS Walk for Life in honor of her late husband, Eric. “He was diagnosed in July, and …
July 2025 Foundation eNews
Two decades of walking strong — Gary Kravitz and his crew Since 2004, Gary Kravitz has been a constant presence at the ALS Walk for Life. “I’ve signed up 20 years in a row,” he says. “I only missed once—when …
LETTER: Advocating for the Renewal of ALLFTD Study to Propel ALS and FTD Research
The Honorable Richard Hodes, MD, Director of the National Institute on Aging The Honorable Walter Koroshetz, MD, Director of the National Institute of Neurological Disorders and StrokeNational Institutes of Health 9000 Rockville Pike, Bethesda, Maryland 20892 Subject: ALLFTD Renewal Dear Dr. …
Statement: “The One Big Beautiful Bill” Puts ALS Families at Risk
On July 4, 2025, “The One Big Beautiful Bill” was signed into law. It includes deep cuts to healthcare programs that people living with ALS and their caregivers rely on: Medicaid, Medicare, and the Affordable Care Act (ACA). These cuts, …
July 2025 Foundation eNews
Walking for Richie—and for each other For more than a decade, the D’Ambrosia family has come together for the ALS Walk for Life, honoring the man who brought them to the cause. Diagnosed in 2013 and living in Bronzeville near …
June 2025 Foundation eNews
Get ready for the biggest ALS event in the Midwest “This is a great event, there’s a DJ and things for kids to do. The location is great and helps bring out a crowd. I love the walk and the …
June 2025 Foundation eNews
Walk with us toward a world free from ALS Get ready to lace up your sneakers and join the largest ALS gathering in the Midwest: the Les Turner ALS Foundation’s ALS Walk for Life! It’s more than just a walk—it’s a …
Faces of ALS: Trevor Storm, Running for a Reason
Trevor Storm is no stranger to the fragility of life. As a hospice nurse from Shelbyville, Illinois, a small town of fewer than 5,000 people, he has spent his career helping families navigate their most vulnerable moments. But it wasn’t …
May 2025 Foundation eNews
Highlighting our community this ALS Awareness Month As ALS Awareness Month draws to a close, we’re continuing to highlight the lived experiences of people affected by ALS. In the second half of May, we’re focusing on two powerful themes: — The financial …
