Delivered to the offices of Sen. Susan Collins and Sen. Patty Murray on the U.S. Senate Committee on Appropriations, and the offices of Rep. Tom Cole and Rep. Rosa DeLauro on the U.S. House Committee on Appropriations. March 18, 2025 …
UPDATED: Statement on Proposed Cut to Congressionally Directed Medical Research Program for FY2025
Updated: On March 14, 2025, the Senate passed a bill that will fund the government through Sept. 30, 2025. We will continue to provide updates as we learn more about how these budget cuts will affect ALS research. This is …
Never back down, never give up: Ken Trent
For Ken Trent and his family, those six words—never back down, never give up—have become their motto. His youngest daughter first said them, and now they guide the Trent family through each day. “ALS takes away your independence,” says Ken. …
March 2025 Foundation eNews
A night of hope and celebration with Paul Lisnek The 37th annual Hope Through Caring Gala is set to be an unforgettable evening, and we’re thrilled to be joined again by Paul Lisnek— WGN’s own Emmy Award-winning television host, political …
February 2025 Foundation eNews
Join us for “The Impossible Dream” We are thrilled to welcome Aaron Lazar to the Hope Through Caring Gala on Saturday, April 5. An award-winning Broadway star, television and film actor, and recording artist, Aaron is bringing his musical journey, “The …
LETTER: Neuromuscular Advocacy Groups Oppose NIH Indirect Cost Cap of 15%
On behalf of the approximately 300,000 Americans living with a neuromuscular disease (NMD), the undersigned 40 patient advocacy organizations strongly urge the National Institutes of Health (NIH) to immediately reverse and retract “Supplemental Guidance to the 2024 NIH Grants Policy …
2024 Impact Report
Your support of the Les Turner ALS Foundation has made an incredible difference in the lives of people with ALS, their families, their caregivers, and everyone who has lost someone to this disease. Every time you made a donation, held …
URGENT: Tell Congress to Oppose Catastrophic Research Cuts
The National Institutes of Health (NIH) recently announced a major reduction in grant funding that would have a catastrophic impact on research, especially for neuromuscular diseases like ALS. NIH funding has led to amazing discoveries, including the underlying mechanisms of …
Advocacy in Washington DC
This week, we joined over 50 advocates in Washington, DC at the “More Than Our Stories” conference to discuss priorities for 2025, focusing on research investment, quality of care, and support for those living with ALS and their caregivers. Our …
February 2025 Foundation eNews
Celebrating a force for change At the Hope Through Caring Gala, we’re proud to honor Jean Swidler and Mindy Uhrlaub, founders of End the Legacy, with the Harvey and Bonny Gaffen Advancements in ALS Award. Jean and Mindy’s mission is deeply …
