By Gwen Gotsch I lost my 30-year-old son to ALS in July of 2017. Kris was 27 and newly married when he was diagnosed. He died just three years later. During those three years, Kris, an elementary school special ed …
Foundation to Honor Robert Ives and Steve Gleason at Virtual Hope Through Caring Gala
Both Men Continually Help Raise Funds and Awareness, Advocate for Change While on their Own ALS Journey The Les Turner ALS Foundation will host its 34th Annual Hope Through Caring Gala on Saturday, March 20, bringing together supporters for an elegant …
March 2021 Foundation eNews
Newly Discovered Compound Found to Reverse ALS Neuron Damage “We have identified the first compound that improves the health of upper motor neurons that become diseased,” shares Hande Ozdinler, PhD, senior author of the study along with Richard B. Silverman, …
Newly Discovered Compound Found to Reverse ALS Neuron Damage
We are pleased to announce more exciting news on the ALS research front coming out of our Les Turner ALS Center at Northwestern Medicine. On February 22, Northwestern scientists, led by P. Hande Ozdinler, PhD, and Richard B. Silverman, PhD, …
Faces of ALS: Working to Make True on a Wish
When Jonathan Brent, MD, PhD, asks his ALS patients what their goals are, the answer is almost always the same: to find a cure for ALS. “What motivates me,” says Dr. Brent, “is how I can make true on that …
PEOPLE LIVING WITH ALS ELIGIBLE FOR COVID-19 VACCINATIONS STARTING FEBRUARY 25 UNDER ILLINOIS PHASE 1B; CHICAGO, COOK COUNTY EXCLUDED
We are pleased to announce big changes in access to COVID-19 vaccinations for people living with ALS in Illinois. The State is making plans to expand COVID-19 Phase 1B vaccination eligibility on February 25 to people who have comorbidities and …
February 2021 Events eNews
Hoops & Hope Time to dress in your favorite team’s jersey because the NCAA Bracket Challenge for Charity hosted by the Young ProfessionALS Group is back! The Bracket Challenge is an exciting few weeks about having fun, competing against one …
February 2021 Foundation eNews
Therapeutic Potential for New ALS Drug According to a recent study published in JAMA Neurology, ezogabine, an experimental drug, is found to have potential therapeutic possibilities for ALS treatment. “Most importantly, ezogabine decreased cortical and spinal motor neuron excitability in …
ALS Groups Urge Social Security Administration to Grant Immediate Access to SSDI Benefits
The Les Turner ALS Foundation has joined with 18 other ALS advocacy organizations, signing onto a letter strongly urging the Social Security Administration to honor the enactment for all those already in the waiting period. On December 22, 2020, the …
Faces of ALS: Hope & Action in the ALS Community
“There is more hope and more action happening right now within the ALS community than I ever thought I would see in my lifetime,” says Deb Paust of Grayslake, Illinois. “It is empowering to be a part of that change.” …
