Personalize Your Care Act

Take action and urge your Representative to support the Personalize Your Care Act (PYCA)! This act was introduced by Earl Blumenauer (D-OR) and Rep. Phil Roe (R-TN) in the US House of Representatives to increase accessibility to and public awareness …

670 The Score Values: Les Turner ALS Foundation

Executive Director, Andrea Pauls Backman joined Kevin on 670 The Score during the segment Score Values to discuss the Les Turner ALS Foundation’s upcoming events.  Listen to the entire interview to learn more about the Foundation and events to get …

ALS Drug Development Guidance Available for Comment

Make Your Voice Heard We are happy to announce that the first draft of the community-driven FDA Guidance on ALS drug development is available for your review and comment. In our April e-newsletter, we shared the exciting news that the …

Registration Open: 2016 ALS Walk for Life

The 2016 ALS Walk for Life will be held on Sunday, September 18 at Soldier Field in Chicago and you can be one of the first to register. Join over 7,000 people at Chicago’s largest gathering for people living with …